Understanding Xeroderma Pigmentosum (XP): How An Ultra Rare Skin Disease Helps Us Understand Our Skin

In this episode, Consultant Dermatologist Dr Emma Craythorne takes us into a world where daylight isn’t safe. This is the reality for XP sufferers. In light of this year’s Rare Disease Day Emma’s raising awareness for a condition she works very closely with. As well as explaining what XP is and how to detect it, She also discusses how XP research plays a crucial role in helping dermatologists and medical professionals understand the broader effects of sun damage on skin health.

Dr. Craythorne touches on the psychological impact of living with a rare disease, as well as the common misinformation surrounding such conditions. Gain valuable insights into how studying XP can help prevent sun-related skin issues for everyone.

Learn more about Xeroderma Pigmentosum (XP):

Guy’s and St Thomas’ NHS website: XP
Action for XP

Have questions? Reach out to us at [email protected].

Producer: Ella Blaxill

Series Editor: Eve Streeter

Music by: Simon Elms

This is a Raconteur Studios Production.

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