Unraveling Fatigue: Exploring ME/CFS, and Long COVID (Ep 144)

What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness.

Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn’t—build their own science.

You’ll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you’ve ever wondered why your body feels like it’s working against you—or what recovery might actually look like—this episode may change everything.

Takeaways:

She couldn’t stand in front of the fridge—until a “taboo” medication changed everything.

The labs were normal. Her body was screaming.

A grandmother, a diagnosis, and an unstoppable fight for answers.

What if your symptoms don't show up on any scan… but still hold the truth?

The protocol that sparked a remission—and a global movement.

Find the episode transcript here.

Reference Links:

RemissionBiome w/Dr. Yellman

https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Learn about Isabel Ramirez-Burnett :

Twitter: https://x.com/isabelramirezrd?lang=en

Renegade Research Twitter: https://x.com/renegaderes

Youtube: https://www.youtube.com/remissionbiome

LinkedIn: https://www.linkedin.com/isabelramirezrd

BlueSky: https://isabelramirezrd.bsky.social

Amazon: https://amzn.to/3EB7PcC

Keep up to date with the HypermobilityMD:

YouTube: youtube.com/@bendybodiespodcast

Twitter: twitter.com/BluesteinLinda

LinkedIn: linkedin.com/in/hypermobilitymd

Facebook: facebook.com/BendyBodiesPodcast

Blog: hypermobilitymd.com/blog

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