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Bereaved Parents' Club
Bereaved Parents' Club

#6 Giving Back: Batten's Disease and Befriending

20 min•27 maj 2024

Om avsnittet

Lynsey lost both of her beautiful children to Batten’s Disease, a rare and complex disease that is always fatal. In this episode, she speaks with grace and compassion about her family’s journey through these terrible losses, and how she is now able to help others facing similar challenges, as a peer befriender. 


To find out about the Batten’s Disease Family Association, click here.


To buy Poppy’s single, When You Were With Me, follow this link. To listen on YouTube, click here. 


This episode is dedicated to Ellie Mae and Caleb.


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