77. Battling rare diseases: patients and scientists, Ethan Perlstein, Founder and CEO, Perlara

Dr. Ethan Perlstein is the founder and CEO of Perlara PBC, the first biotech public benefit company established in 2014 that partners with highly motivated and entrepreneurial families and foundations to develop treatments and cures for genetic diseases. Ethan is also cofounder and CEO of Maggie's Pearl LLC, a joint venture co-owned by Perlara, a family based in Michigan and the Mayo Clinic that is commercializing a repurposed drug for a congenital disorder of glycosylation. Ethan relaunched Perlara in 2021 as the first fully decentralized, distributed and web3 biotech company.