Start / Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama

65 avsnitt • Längd: 40 min • Månadsvis

Barn och familj • Föräldraskap • Hälsa och motion • Medicin

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

Avsnitt

BONUS EP: What to do when the world feels like too much

26 juni | 27 min

Life Lately: Solo Parenting, Sick Kids, & School Plans

28 maj | 30 min

Creative Fundraising in the Rare Disease Community – Global Genes Panel Recording

Life Lately: A Rare Mama Catch-Up

23 april | 32 min

Navigating Resources and Grants with Advocacy Abby

5 mars | 59 min

Real Food Blended Diets Made Simple: A Conversation with Registered Dietitian Hilarie Geurink

29 januari | 62 min

A Mother’s Legacy: Lauren Williams’ Commitment to GRIN1 Families in Honor of Her Son

17 januari | 53 min

Goals for 2025, Tackling Winter Blues, and SNOWMAGEDDON

7 januari | 23 min

A Rare Mama’s Reflections on the Holiday Season with Yours Truly

22 december 2024 | 33 min

Turning Pain into Purpose: Rare Mama, Ashley Haywood’s Advocacy for Sanfilippo Syndrome

3 december 2024 | 67 min

Special Family Transitions with Special Needs Divorce Coach, Mary Ann Hughes

5 november 2024 | 41 min

Mini Ep: My EXCITING, BIG Announcement!

1 oktober 2024 | 16 min

The Eight Different Types of Advocacy with Director of Community Engagement of Global Genes, Daniel DeFabio

17 september 2024 | 59 min

Officially entering my self love era

3 september 2024 | 29 min

Prioritizing your mental health as a caregiver with Founder and Executive Director of We Are Brave Together, Jessica Patay

20 augusti 2024 | 59 min

Podden Confessions of a Rare Disease Mama är skapad av Jillian Arnold. Poddens innehåll och bilderna på den här webbplatsen hämtas med hjälp av poddens RSS-flöde.

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