Start / Confessions of a Rare Disease Mama / Catchup dealing with the holiday blues

Catchup/ dealing with the holiday blues

21 min • 2 december 2023

It's been a whirlwind month, so I'm catching you all up on what's been going on with us lately during this episode. I also touch on some of the inevitable feelings of jealousy I felt over the holiday and how I was able to move past them. Happy Listening, friends!

Resources & Links for this episode:

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Senaste avsnitt

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Turning Pain into Purpose: Rare Mama, Ashley Haywood’s Advocacy for Sanfilippo Syndrome

Special Family Transitions with Special Needs Divorce Coach, Mary Ann Hughes

Mini Ep: My EXCITING, BIG Announcement!

The Eight Different Types of Advocacy with Director of Community Engagement of Global Genes, Daniel DeFabio

Officially entering my self love era

Prioritizing your mental health as a caregiver with Founder and Executive Director of We Are Brave Together, Jessica Patay

Our MAW Disney trip recap with special guest (& my better half), Don Arnold

Mini solo episode: If I could go back in time

Mission: Inclusion with Speech Language Pathologist & inclusive children's book author, Megan Craft

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How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham

Life Update

When the "FOMO" starts creeping in as a medical parent

Is my child's diagnosis a "karmic wake up call" from the universe?

Coffee & catchup

My top travel tips for road tripping with your medically complex child

Ain't no shame in my anti-depressant game

A Father's Perspective with Rare Disease Dad & Director of Community Engagement for Global Genes, Mr. Daniel DeFabio

Top lessons I have learned in my first four years of being a rare disease parent

How to best support the caregiver parent in your life

Where I have been the past two months

How to find and manage the right care team for your medically complex child

Career transitions and life as a rare disease mom to twins with Angel Aid Cares Operations Manager, Megan Loden

The word(s) I will live by in 2023

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How to fit in some fun during the busy month of December

Family planning after a diagnosis with special guest and fellow rare mama, Taylor Sabky

A COVID-style Thanksgiving

Learning when to let go of control (or as my Grandma always said, "que sera sera!")

Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery

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Celebrating every inch-stone!

One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch

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Life update/stream of consciousness and how I'm learning to let grief & joy co-exist

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*BONUS EPISODE* How to deal with ignorant comments

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Life Update/Stream of consciousness

The 5 minute journaling techniques I use to help declutter my brain

How to (kindly) cut ties with a therapist or doctor who is no longer serving your child in the way they need

How to make connections and utilize all your resources as a rare disease parent

Father's Day Episode with extra special guest: my husband (AKA: Dadvocate-EXTRAORDINAIRE)

How to continue to nurture your relationship with your spouse as a special needs parent

Trusting your "parental instincts"

The post-holiday funk

Our diagnosis journey

BONUS EPISODE How to deal with ignorant comments