Confessions of a Rare Disease Mama

Mini solo episode: If I could go back in time

17 min • 4 juni 2024

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With the passing of Memorial Day weekend, we get to another anniversary of our D-Day. 5 years since our entire lives were flipped upside down. Join me during this mini solo episode as I share some things I wish I could go back and tell myself at the time of Roman's diagnosis, knowing what I know five years in.


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