Confessions of a Rare Disease Mama
Navigating Resources and Grants with Advocacy Abby
Finding financial support and resources as a rare disease parent can feel overwhelming—but what if there was a platform designed to make it easier? In this episode of Confessions of a Rare Disease Mama, I sit down with Abby Zachritz, also known as Advocacy Abby, to talk about the incredible tool she’s created in partnership with SupportNow to connect families with grants and resources tailored to their child’s diagnosis and location.
Abby shares how her own experiences as a mother and caregiver to her disabled son led her to build this platform, the impact it’s having on families, and practical advice for caregivers looking for financial support. If you’ve ever struggled to navigate the world of grants and assistance programs, this episode is for you!
In This Episode, We Discuss:
✨ How Abby became "Advocacy Abby" and what inspired her platform
✨ The challenges families face in accessing financial assistance
✨ How her platform works to match families with available grants
✨ Tips for advocating for financial support and navigating the system
✨ Why caregivers need more access to resources—and how to find them
Connect with Abby & Explore Her Platform:
📲 https://www.advocacyabby.com/
📲 Follow Abby on social media: @AdvocacyAbby
📲 Explore grants through CONNECT
📲Explore SupportNow
📲Book a consultation with Abby here
Listen to my episode with Alena Gourley here
Check out Alena's new book Blessed By Death on amazon.
Resources & Links for this episode:
- Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
- Learn more about our brave warriors: saveromanandstella.com
- Support our family: GoFundMe
- Follow us!
- Instagram: @confessionsofararediseasemama
- TikTok: @rare_mama
- Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
- Get your FREE Positive Affirmations for the Medical Parent PDF here!
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