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Enjoy this solo catch-up episode! Some things I bring up during this episode:

-Our kid's starting school (homebound vs. in person)
-Roman's upcoming SIXTH birthday & fundraiser
-Dealing with ignorant comments online
-What quality of life means to me and my children
-Upcoming weekend trip I have planned (without the hubby and kids)!
-How it felt turning 36 this summer and officially entering my SELF LOVE era

Listen to my episode on the Rarely Normal Podcast
Listen to my story episode on the Rare Life

Resources & Links for this episode:

Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
Learn more about our brave warriors: saveromanandstella.com
Support our family: GoFundMe
Follow us!
- Instagram: @confessionsofararediseasemama
- TikTok: @rare_mama
- Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
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Officially entering my self love era

Senaste avsnitt

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Officially entering my self love era

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Turning grief and trauma into growth and healing with Past Life Regression Therapist, Alena Gourley

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How to fundraise like a BOSS with special guest and fellow rare mama, Brittany Markham

Life Update

When the "FOMO" starts creeping in as a medical parent

Is my child's diagnosis a "karmic wake up call" from the universe?

Coffee & catchup

My top travel tips for road tripping with your medically complex child

Ain't no shame in my anti-depressant game

A Father's Perspective with Rare Disease Dad & Director of Community Engagement for Global Genes, Mr. Daniel DeFabio

Top lessons I have learned in my first four years of being a rare disease parent

How to best support the caregiver parent in your life

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How to find and manage the right care team for your medically complex child

Career transitions and life as a rare disease mom to twins with Angel Aid Cares Operations Manager, Megan Loden

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Cheers to a new year! Our top moments of 2022

Walking through that pesky tunnel of grief

How to fit in some fun during the busy month of December

Family planning after a diagnosis with special guest and fellow rare mama, Taylor Sabky

A COVID-style Thanksgiving

Learning when to let go of control (or as my Grandma always said, "que sera sera!")

Stepping out of survival mode and putting your best self forward with special guest: podcast host and life coach, Lauren Lowery

'Tis the season for colds and flus

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Making the leap into a healthier lifestyle with Nutrition Coach and Personal Trainer, Sabrina Miller

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One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch

Stream of consciousness/ Roman turns FOUR

Reminiscing about our big Florida trip with special guest: my husband, (and car-packer extraordinaire) Don Arnold

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*BONUS EPISODE* How to deal with ignorant comments

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Father's Day Episode with extra special guest: my husband (AKA: Dadvocate-EXTRAORDINAIRE)

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