Confessions of a Rare Disease Mama
One family, two different rare diagnosis' with special guest (and a TRUE rare disease warrior mom) Nadia Slatch
You guys. I'm so excited to share this beautiful conversation with you this week.
Nadia is the definition of a true super mom. After giving birth to two healthy children, she had her third child, Zayn, who was diagnosed with Niemann Pick Disease Type C. After dealing with the devastating diagnosis and then loss of her beautiful boy at age 4, she gave birth to another precious son, Rayyan, who was later diagnosed with a completely different rare and life limiting disease than his late brother. Join us as we discuss what it's like having two children diagnosed with two different rare diseases, the heartache of losing a child (while 5 months pregnant), surviving a heart attack at a very young age, and so much more. Nadia is hands down, one of the strongest Momma's I have ever had the pleasure of speaking with and a TRUE rare disease warrior mom. I am so inspired by her ability to overcome every obstacle that is sent her way like the true bad ass that she is, all while being an incredible mother, caregiver, and advocate. Oh, and I'm slightly obsessed with her accent :)
SENSITIVITY WARNING for this episode: child loss
What is Niemann Pick Disease Type C?
https://nnpdf.org/niemann-pick-npc/
https://www.confessionsofararediseasemama.com/
Learn more about our children's fight and donate to our cause:
https://www.saveromanandstella.com/
Resources & Links for this episode:
- Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
- Learn more about our brave warriors: saveromanandstella.com
- Support our family: GoFundMe
- Follow us!
- Instagram: @confessionsofararediseasemama
- TikTok: @rare_mama
- Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
- Get your FREE Positive Affirmations for the Medical Parent PDF here!
- Shop our ...