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Confessions of a Rare Disease Mama

Stream of consciousness/ Roman turns FOUR

19 min • 27 september 2022

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Join me as I recap Roman's big FOURTH birthday celebration! I also look back on how amazing and difficult the past four years of being a mother have been. We have come a long way from where we started and I can say without a doubt that the person who is sitting here typing this is not the same person she was four years ago (in all the best possible ways)! 

Check out the birthday reel I posted in honor of my sweet boy turning four:  https://www.instagram.com/p/CixJmzSLQkl/

If you feel compelled, please donate $4 for Roman's 4th birthday to help fast track treatments for our babies (and all other babies fighting ASMD):  https://www.gofundme.com/f/save-roman-and-stella

As always, thanks for tuning in this week!

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