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Confessions of a Rare Disease Mama

Trusting your "parental instincts"

34 min • 30 maj 2022

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Welcome back for the second episode of Confessions of a Rare Disease Mama!

This week I wanted to dive a little deeper into our treatment journey for our kids, the importance of following our "parental instincts," and how all of us mom's have a secret power deep within to GET. SHIT. DONE. Even when the odd's are stacked against us. 

Links for today's episode:

Learn more about our children's journey with ASMD and fundraising efforts: https://www.saveromanandstella.com/

Learn more about Wylder Nation Foundation: https://wyldernation.org/

Donate to our cause: https://gofund.me/58005e69

Resources & Links for this episode:

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