Livestream Catch-up - Unlocking The Future Of MND A Journey Of Discovery And Hope

Dementia Researcher hosted a YouTube / Twitter Livestream on the 23rd June 2023 exploring Motor Neurone Disease (MND) and the remarkable advancements in research, in partnership with MND Scotland.

We enjoyed the session so much, that we decided to release it as a bonus 'extra' podcast - so please ignore any references to links on the screen. Listen to learn more about the disease, the latest advancements in MND research, and specifically about the groundbreaking MND Smart Trial. This unique trial has garnered attention for its innovative approach and has shown promising potential in accelerating the discovery of effective treatments for MND.

Furthermore, the event will delve into the impact of new investments in MND research, exploring how these resources are driving progress and propelling the quest for a cure. Resources mentioned during the recording:

• MND-SMART Website - https://mnd-smart.org/
• MND Scotland Website - https://mndscotland.org.uk/
• Jane Blog - https://www.dementiaresearcher.nihr.ac.uk/guest-blog-uk-motor-neuron-disease-research-institute/

*We can now confirm that the MND-SMART Study does sit on the NIHR Portfolio CPMS ID 44601 for any interested NHS sites.

Adam Smith hosted the session, and was joined by: Dr Jane Haley, representing MND Scotland, brings her extensive expertise and compassionate approach to the discussion. As the Director of Research at MND Scotland, Dr. Haley has been instrumental in bringing the thoughts and priorities of people affected by MND into research and driving forward research initiatives and partnerships. Suvankar Pal is a Professor of Neurodegenerative Disorders and Clinical Trials at the University of Edinburgh. He is co-lead investigator of the innovative MND-SMART trial, the largest ever Phase 3 trial for people living with MND in the UK. Stevie Morris was diagnosed with MND in February 2021. He will bring insights to life, sharing the realities of living with the disease, highlighting the challenges faced by individuals living with MND and the importance of research in improving their quality of life.

A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.

If you prefer to watch rather than listen, you will find a video version of this podcast on YouTube, on our website, and in selected podcast platforms.

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We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.

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