The ALS Research Collaborative: How Your Participation can Accelerate ALS Research

In March 2023, ALS TDI announced the launch of the ALS Research Collaborative (ARC). ARC’s goal is to learn more about the underlying biology of ALS to help accelerate treatments. The study is powered by the participation of people with ALS, who generously share data about their disease, their genetics, and their progression.

This data then informs ALS TDI’s research to find treatments for ALS. It is also shared with the broader ALS research community through the ARC Data Commons, an online portal allowing researchers to access years of data dating back to when the program was founded as the Precision Medicine Program, in 2014.

This program is powered by participants – people with ALS all over the world who have chosen to share their data with ALS TDI in order to help accelerate research. ALS TDI works hard to make sure that participation is as easy as possible for these volunteers – nearly every aspect of the program can be completed from participants’ homes.

Today, on Endpoints, we’re joined by Alan Premasiri, ALS TDI’s Manager of Clinical Operations, to talk about what it’s like to participate in ARC, how ALS TDI works to support our participants, and how their invaluable contributions help move our science forward.

To learn more about ARC and sign up to join the program, visit ALS.net/ARC

Support the show: https://www.als.net/donate/

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