124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar

ABOUT THIS EPISODE (+ scroll for resources) 👇

Dr. Tay is joined by Kaligirwa @blackspectrumscholar, an AuDHD communication researcher, to discuss the intersection of neurodiversity and research, with a particular emphasis on BIPOC representation within the autism community. Kali shares her personal journey of discovering her autism diagnosis and her efforts to highlight the representation of Black autistic individuals on social media. The conversation covers broad topics such as the history of autism subtypes, the diagnostic challenges faced by BIPOC individuals, and the complexities of clinical diagnosis. Dr. Tay and Kali also delve into the importance of evolving our understanding and terminology around autism to build greater acceptance and support as well as how to use social media as a tool to learn while also knowing its limitations.

00:00 Introduction and Guest Overview

01:19 Host's Background and Podcast Purpose

02:22 Guest's Personal Journey with Autism

04:49 Challenges and Representation in Autism Research

07:14 Social Media and Misinformation

11:31 Navigating Research and Personal Experience

26:11 Discussion on Autism Subtypes and Diagnosis

30:53 Understanding PDD-NOS and Stigma

31:47 Challenges with DSM-5 Levels

32:58 Regional Differences in Diagnoses

33:44 Functional Assessment Over Levels

35:24 Issues with Profound Autism Label

37:18 Spiky Profiles and Individual Differences

39:22 BIPOC Representation in Autism Conversations

39:55 Cultural Barriers to Diagnosis

42:57 ODD and PDA: Shifting Perspectives

49:53 Complexities of Diagnosing Anxiety

51:24 Finding Affirming Practitioners

53:28 Conclusion and Final Thoughts

RESOURCES

⚡️ connect with Kaligirwa on Instagram and TikTok @blackspectrumscholar and check out her resource library

⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com

⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism

⚡️ learn from me and submit your questions [could be featured on a future episode] >>

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