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Crucible of the Incurable: Facing ALS (By Anthony Stavrianakis)

11 tim 43 min22 april 2025
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Title: Crucible of the Incurable: Facing ALS
Author: Anthony Stavrianakis
Narrator: Douglas R Pratt
Format: mp3
Length: 11 hrs and 43 mins
Release date: 04-22-25
Ratings: Not rated yet
Genres: Physical Illness & Disease

Publisher's Summary: Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care?

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