S2 Episode 4: Pulmonary Fibrosis Foundation: How Patient Advocacy Is Transforming IPF Research and Care

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Dr Jeffrey Swigris and Scott Staszak discuss how patient advocacy at the Pulmonary Fibrosis Foundation is transforming IPF care and research.

Relevant disclosures can be found with the episode show notes on Medscape https://www.medscape.com/viewarticle/999861. The topics and discussions are planned, produced, and reviewed independently of advertisers. This podcast is intended only for US healthcare professionals.

Resources

Pulmonary Fibrosis Foundation https://www.pulmonaryfibrosis.org/

Managing Cough in Idiopathic Pulmonary Fibrosis https://pubmed.ncbi.nlm.nih.gov/34171385/

PFF Help Center https://www.pulmonaryfibrosis.org/patients-caregivers/medical-and-support-resources/pff-help-center

PFF Scholars https://www.pulmonaryfibrosis.org/researchers-healthcare-providers/research-opportunities/scholars

PFF Registry https://www.pulmonaryfibrosis.org/pff-registry/pff-patient-registry

The Pulmonary Fibrosis Foundation Patient Registry. Rationale, Design, and Methods https://pubmed.ncbi.nlm.nih.gov/32776789/

Circulating Biomarker Analyses in a Longitudinal Cohort of Patients With IPF https://pubmed.ncbi.nlm.nih.gov/38226605/

PFF Community Registry https://www.pulmonaryfibrosis.org/pff-registry/community

Supplemental Oxygen Access Reform https://www.congress.gov/bill/118th-congress/senate-bill/3821

NHLBI Idiopathic Pulmonary Fibrosis Research https://www.nhlbi.nih.gov/research/idiopathic-pulmonary-fibrosis

Department of Defense Basic Research Directorate https://basicresearch.defense.gov/

PFF Become an Advocate https://www.pulmonaryfibrosis.org/advocacy

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Fler avsnitt

S2 Episode 6: Genetics of Pulmonary Fibrosis: What Is Known and What's to Come?

S2 Episode 5: Managing Complex Patients With Pulmonary Hypertension and ILD

S2 Episode 3: Understanding the Role of Circadian Rhythms in Idiopathic Pulmonary Fibrosis

S2 Episode 2: How to Integrate Palliative Care into IPF Treatment Plans

S2 Episode 1: Considerations Around Supplemental Oxygen for Patients With IPF

S1 Episode 6: Now Unfolding: The Future of Idiopathic Pulmonary Fibrosis

S1 Episode 5: Oxygen and Idiopathic Pulmonary Fibrosis: The Experts Advise

S1 Episode 4: How to Cut IPF Symptom Distress

S1 Episode 3: Artful Telemedicine in Idiopathic Pulmonary Fibrosis Care

S1 Episode 2: Idiopathic Pulmonary Fibrosis: Who Gets an Antifibrotic?