14. Love, Loss, Hope

Note: Trigger warning that there is discussion of my Dad’s death and some of the acute challenges that came with his illness. If you’re a listener with MND/ALS or support a loved one, please be mindful of this and know that you can reach out for support. There is a power in story-telling that goes far beyond what we recognize and acknowledge. It is the thread that ties us together as human beings and I believe narratives have the power to transform and inspire. In this episode I share a personal story from my family. It includes the story of how my parents came to be together: the greatest love story I’ve ever known. I talk about how my Dad went from the depths of depression to finding hope and a renewed sense of love and life through my Mum, and how together, they took on the biggest fight of their lives. Dad’s terminal diagnosis of Motor Neurone Disease gave him 3-5 years to live. Together they fought against the ravishes of the deteriorating disease, stripping my Dad of all independence, but he continued to live a thriving and rewarding existence: for 20 years. Their story demonstrates the importance of perspective. The power of love. The lifeline of hope. The realities of grief as a part of life. And the ultimate importance of never giving up. I hope from this you draw inspiration, strength, and resilience that you can enact in your own life.