Between the Cracks: Navigating Belonging in Cancer and Rare Diseases with Parvathy Krishnan

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As you may or may not know, this episode is extra close to my heart, as my son has a disability with cancer at its center and Parvathy also has a similar experience.  After both her children were diagnosed with multiple rare/ultra rare and nano rare diseases (some of which predispose them to cancer), Parvathy Krishnan dedicated her life to empowering people worldwide to advocate for themselves no matter their location or diagnosis. She is now a Rare Disease Specialist and healthcare professional with a Masters in Clinical Nutrition. She is also an expert in Patient Advocacy and Patient caregiver education. I am honored to speak with her about her experience with her children and the intersection of cancer and rare disease.

Connect with our guest, Parvathy Krishnan
instagram: https://www.instagram.com/parvathy_r_krishna/
linkedin: https://www.linkedin.com/in/parvathy-raman-krishnan

 

Connect with Kara, host of The Special Needs Mom Podcast:
Instagram: https://www.instagram.com/thespecialneedsmompodcast/
Website: https://www.kararyska.com/