Parenting Differently When You Expect a Shorter Life with Daniel DeFabio

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075: Welcome back to the Special Needs Mom podcast. Today I’m doing something totally different and I have a dad on the show with us.  Daniel comes to us with the unique circumstances of losing his special needs son 18 months ago. Daniel is very involved in the film industry and has started a channel (to download on streaming devices) to raise awareness for rare disorders!

In this episode, we talk about how to cope with internal conflicts and personal relationships after receiving such a tough diagnosis and a short life expectancy. Daniel explains that it’s often hard to decide how much information to share about their circumstances but he never wants to do a disservice to his son's memory. 

We also talk about role models in the special needs parent community.  He emphasizes that you can use whatever gifts you have to serve the community or your own family. You don’t have to do what someone else is doing. Daniel wants to encourage you to do whatever you can.


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Connect with Daniel
IG: https://www.instagram.com/disorderrarediseasefilms/
LinkedIn: https://www.linkedin.com/company/disorder-the-rare-disease-film-festival/
Facebook: https://www.facebook.com/rarediseasefilmfestival
Channel: http://thedisorderchannel.com/

Connect with Kara, host of The Special Needs Mom Podcast:
Instagram: https://www.instagram.com/thespecialneedsmompodcast/
Website: https://www.kararyska.com/